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Product details
File Size: 1575 KB
Print Length: 208 pages
Publisher: Pitchstone Publishing (May 1, 2016)
Publication Date: April 15, 2016
Sold by: Amazon Digital Services LLC
Language: English
ASIN: B01DFTMOYC
Text-to-Speech:
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Amazon Best Sellers Rank:
#226,922 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
A well written and thorough examination of chronic illness and invisible disability. Highly recommended. It meant the world to me to read about the experience of someone like me.
I also suffer from crohns and arthritis and I found this book to be helpful in getting to know myself better. I have had a hard time and commute still to remember that I'm disabled even if I try not to show it. I hope to share this book with other people suffering a disability.
This is a a great book. It is so well rounded, inclusive, and thoughtful, while sharing personal stories. I highly recommend this book for any young person with chronic illness, you won't feel quite so alone. I also recommend it for friends or family of someone with a chronic illness/disability, this insightful book will give you a little glimpse into some of the stuff people go through. It even includes practical suggestions in the back.
The vast majority of books out there about chronic illness (and especially autoimmune diseases) are glorified snake oil sales guides. Ania's book is anything but. I was a pro-science advocate long before I became ill and this book really resonated with me. If you are looking for a flowery, inspirational book that ignores facts and science, this book is not for you. This book is well-researched and important but also interesting thanks to Ania's candid autobiographical storytelling abilities. I wish everyone in my family would read this book.
This book is a must read for those of us with chronic illnesses/pain, those of us who are disabled because of these things, because we are not alone. This is a must read for those of you who love someone who is disabled or has a chronic illness/pain, this is a deeply personal insight into how hard things can be and how we might feel. While our illnesses and disabilities may vary so many emotions and thoughts are the same. Feeling invisible, worthless, and dealing with being sick in a world that would prefer we were not.I urge anyone to read this for the above reasons, or if you have never dealt with chronic illness in any capacity, then I urge you to read this as well so you can understand.This book made me tear up, get uncomfortable, gasp, it made me laugh, it made me nod, and even say out loud "YES!" when the author writes something that resonated strongly with me. It is a quick read and the author engages you enough that you won't want to put it down. Will be buying copies for people I know who need to read it also.
Loved this book. I have Ehlers Danlos Syndrome and several other conditions and this was a very cathartic read. The authors experience is very similar to my own.
I loved that this book taught you so much about disabilities but had a good plot, as it went through her life and explained so much. It ends with a great summary as basically a take home message!!
I just finished this book, and oh, how I wish I'd been able to have read it when I was 13 and my chronic pain journey started. If you have chronic pain, if you're disabled - this book is a wonderful reminder of how you are not alone. You aren't broken. You've done nothing wrong. There's a lot about society that's messed up, and this will help you navigate it.
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